Friday 29 September 2023

Is it Autumn now?

 It’s been a time of tense appointments, antibiotics and wandering cats. It’s supposed to be autumn but the trees are holding onto their green leaves and enticing us with thoughts of sunny days. But the nights are changing and our solar lights  spring in to life earlier and earlier. The bees ( thats the lights)cheer up our patio aimed at warming the winter nights,  a contrast to the darkening skies. 

A series of urine infections have me wearing out the carpet trotting back and forth to the toilet, cursing the side effects and the relentlessness of it. Honestly I haven’t been feeling great, weary and going from one health issue to the next. As we approached the oncology appointment and to get the result of my latest scan I was nervous and saw the same in Andrew’s expression. So we had the usual rage at the car parking and rushed to get there on time and then waited for 90 minutes to be seen. The music ( smooth radio) was playing a bit too loudly, with every cheesy song known to man. Eventually Andrew embraced it and was singing along quietly and making me laugh. It’s laughter that sustains us always. But in time the oncologist confirmed that all my symptoms were not due to infection but due to the liver disease advancing again. Although I knew I felt tears close to spilling down my cheeks. Our hearts sank but we knew it was coming. Back on another oral chemo, back in a three week cycle of a kind of cancer umbilical chord trapping you to the cancer ward. It’s world that is both familiar and frightening. Our summer was definitely over.

I visited our modern art gallery recently and parked under the neon sign that said “everything is going to be alright” and decided that it’s an omen and Andrew captured the image. 


Recently Koshka the cat has been behaving strangely. Autumn generally means him snoring the afternoon away but recently he’s been out much more. So it’s been hard to know where he is. A few nights ago  I headed to bed saying is the cat in? Andrew’s reply was hesitant so I called for him all around the outside and in the hall. Nothing. Andrew did that some more looking under beds as well as in the gardens. Nothing. We both slept for a while then I heard a noise so went out to look again. The rain was pouring down. Still. Nothing. Andrew went outside aware of the risk of being caught wandering at night in his PJs!! My mind was racing and then- yes you guessed the cat skipped down the stairs looking for dinner -“he’s here!” I said cautiously, uncertain of the reply of the nighttime wanderer. I won’t repeat what was said. But then we slept soundly till morning. 

We were retelling the tale to our son, able to laugh now. Andrew said I think maybe the cat has dementia. He said are you sure it’s that, he’s just come out of the drinks cupboard…What a week it’s been and I’m on yet another antibiotic and waiting for the appointment to start chemo. Life feels tough. But I’m at the final stage before printing my book! It’s my light in the gloom and helping me look forward. Here’s how it’s going to look, by way of a teaser. More on this soon.


Tuesday 12 September 2023

Using your bounces wisely!

 Autumn awaits


I found I hadn’t the drive to write this blog last month. We’ve had precious time with family and fitted in some well paced fringe shows as well as the final concert of the Edinburgh International Festival which was an inspiring conclusion to August in Edinburgh. 

I’ve crashed and burned too at times. The worst being a flare up of rheumatoid arthritis. Grim. Additional treatment, pacing and a referral back the rheumatology has helped. But it’s left me rather shaken. And now I have another urine infection. I’m accepting that with so many conditions, this is my life. But I’m here and doing my best to get the balance between emotional and physical well-being. I do need connection with the outside world but that needs to be well managed. And given all that I managed a trip to North Berwick, ate prawns at the lobster shack and tried out my first beach wheelchair! I loved it and wished we still had Cara to run alongside and be reminded that life is good. ( Phia-next visit this is a definite!!)


This weekend we celebrated our grandson’s birthday. Hats off to his Mum and Dad who coped with the mayhem of five year olds, bouncy castles and face painting. And supported the building of more Lego in one day than I thought possible. Throw in dinosaurs and baby Yoda and you can picture the scene. The day after the party delivered the best line of the weekend. When I asked my grandson if he had any bouncing left for the trampoline in the park after the bouncy castle the day before, he replied, “I never run out of bounces, Grannie”.  Any one who has ever learned about pacing probably knows about using up your spoons but for me that’s now my bounces! How many bounces do you have? My bounces have left the building to be honest but the question will always make me smile.  


My book is close to printing now and that’s incredibly exciting and has evoked a serious case of imposter syndrome. And the more I look at it the less typos I can see. But I am really pleased with how it looks. The next stage feels a big one but I can’t stop now. Any wise words welcome!! 

Hopefully October will bring a launch date. 

Is this the terminus?

In the recent  interview with the BBC they referred to me as terminal. That word triggered lots of people I know to be in contact me. It’s n...