Apologies to the Bard on this his birthday, but I wrote this a few years ago after my second diagnosis of breast cancer. I must admit when I was thinking about the future I didn't think I would be doing what I'm doing now. But I guess this life expereince has taught me not to waste life and to make the difference I can when I'm able. For all who face adversity, you never know what life can hold, don't waste a minute of it....
Tae a breast!
Wee sad and broken tim'rous breast,
O, what a panic was in my head!
I need na worried awa sae hasty,
Wi' fear and fright!
I wad be laith to lose thee
Withoot a fight!
But breast, I tried before wi’ sma’ gain
In proving foresight may be vain;
The best-laid schemes o' mice an' men
Gang aft agley,
An' lea'e me back to face more pain,
And chance o’ more!
And sae to clinics I maun go
And nae new cancer to show!
Decision time wis loomin
Wid staying as is stop me from bloomin
Aye the answer had to be and sae
To the surgeon I maun gae
Still I am blest, we must agree;
Only the surgeons knife will toucheth me:
And och! I must cast my e'e,
On hopes for prospects cheer!
An' forward, tho' I canna see,
I guess an' try no tae fear!
This blog is about my thoughts on my own experience of breast cancer and becoming disabled, on self care, my passion for improving health and healthcare and about heartful leadership in all areas of life.
Sunday, 25 January 2015
Saturday, 24 January 2015
Almost like the blues..
January
can be a difficult month for many, depression can stalk us when there is such
little day light. Its lightened only by scenes like the one above that greeted
me this week in Inveraray.
Like many
I have experienced and witnessed the impact of depression on myself and people
I love and its a devastating illness. So often it's undiagnosed and diminishes
lives, steals joy, steals life even.
It's the great unspoken illness. Years ago we used to whisper the word
cancer, now it's said more openly; but not so depression. It's still held
secret often and nursed as something shameful; a failing. But no one would
choose depression, would they? That dark tunnel of anxiety, that crushing
burden of joylessness, that feeling of hopelessness, those weights tied to your
life dragging it down making the simplest of tasks a nightmare to achieve.
No-one would choose it and yet still guilt sneaks in, part of the symptoms it
seems, destined to feed the condition, to further dent a fragile self esteem.
So when I
read an article that said actually depression isn't the psychological problem
we thought but really more a physical one, I caught myself feeling an element
of relief for a moment. "Not guilty your honour, wisnae me, a virus done it and
ran away". So I kept reading....
The
researchers had noted that depression frequently was preceded by illness and
they noticed increased inflammatory responses. Is depression a kind of allergic
reaction to illness perhaps? We recognise that inflammation plays an important
part in our most recent epidemics and
some suggest depression may even be as a result of infection.
But..
" Others aren’t
willing to go that far, not least because infection is not the only way to set
off inflammation. A diet rich in trans fats and sugar has been shown to promote
inflammation, while a healthy one full of fruit, veg and oily fish helps keep
it at bay. Obesity is another risk factor, probably because body fat,
particularly around the belly, stores large quantities of cytokines.
Add this to the fact that stress, particularly the kind
that follows social rejection or loneliness, also causes inflammation, and it
starts to look as if depression is a kind of allergy to modern life ."
Depression
may be a kind of allergy to modern life; a challenging statement and yet it
also makes sense. So what is the answer? It's complex isn't it?
Perhaps not, the answer lies in an anti-flammatory pill say the researchers, maybe
taken alongside an antidepressant to improve the effectiveness. Crack out the
neurofen! Of course the solution to our modern life will be a pill, that's in
keeping with how we run our modern lives, isn't it? But I found myself deflated
when I read this. It was a bit like almost finding a secret treasure and then
realising it wasn't special at all.
If we
think of allergies after all, we might take an antihistamine but we would also
avoid what made us allergic wouldn't we? I agree it makes sense that depression
isn't only psychosocial, but the solutions must surely also lie in how we live
our lives and how we treat ourselves and others with compassion.
I do hope
our answer will instead be to begin to peel back the layers of the unintended
consequences of modern living. We need to get back to eating food, ( see my blog on this) not a manufactured version of it and as a society we need to make
that easy to do. Let's collectively acknowledge the impact of modern
living on health and not blame individuals for this but instead work together
to make it easier to embrace wellbeing in its widest sense.
I firmly
believe the call for change we see in politics just now is people finally
saying we need to change how we do things. And that's scary, but maybe it's
scarier to do nothing?
Governments
can't have all the answers, no one does but let's give our support to those who
are willing to focus on wellbeing for all, foster thriving communities and who
demonstrate compassion for all. We can make that difference and the right time
to start is now.
For my fellow Cohen fans....here he is throwing out a challenge as only he can do..as he says ,its almost like the blues.
Sunday, 18 January 2015
Whatever you do, or dream you can, begin it...
Whatever
you do, or dream you can, begin it. Goethe
My life
at the moment is a very delicate and rich balancing act of running my business,
attending hustings with the aim of being selected to stand as an MP and being a
Mum, a wife and a daughter too. As I write my daughter is traveling to see us
and I'm so looking forward to seeing her for a few days. Last weekend was
seeing my Mum in her care home, looking fragile but happy with new friendships
strengthening. Undoubtedly the trip to see her great grandsons was her
highlight. Just the smiles on their faces bring her alive.
As we
returned back to the home we were greeted by the cat. Her name is Mama one of
the other residents told me. Mama was the focus that day. Everyone from the
staff to the residents had a special hello, a purr filled welcome. One of the
gentleman was in singing mode too and as Mum joined them in the dining room,
everyone was listening; a special atmosphere settling. His words maybe didn't
match the music but his animation was transfixing and joyful too. "Who
told him he could sing?" Mums friend said. She replied I "hope it's not catching" ( she has
a horror of singing in public).So we laughed but also agree that had my Dad still
been with us he would have been joining in, never one to miss the chance to
sing. The warmth of the home means there is real sense of life being lived
here. It's probably why whenever I phone Mum isn't in her room, choosing
instead to join the others. The upside of giving up her home is that loneliness
is a thing of the past.
As we
left she waved with a smile and my heart lifted till the next visit. You will
understand that few days later when I
read this fabulous article by Atul Gawande about how a young doctor
brought a nursing home back to life, it moved me deeply. It's so uplifting to
read, to be encouraged by his boldness and to see the results. He made me want
to set up a nursing home and do the same, sometimes direct action is the way to
enable the change you want to see!
This
story has so many layers to learn from. He was bold, he was willing to stand
out from the crowd, he was willing to fail,he saw what needed to change and he
followed that through. Truly inspiring.
Maybe
that's where my worlds meet? In being willing to not only campaign for but also
put into action what I believe in and be willing to risk failing. The
campaigning work I have done in the last year has been, for me, all about
creating a more just, fairer and as a consequence more prosperous society,
where every voice matters equally. Achieving that in Scotland, I have come to
believe is through us having most, if not all, of the powers here.
That's
why I'm going out these cold January evenings to seek the support of those
members to choose me as their MP candidate. I'm not the pushiest, not the
noisiest either, that's just not me. But my track record shows my tenacity, my
determination and my ability to lead and make change. Whatever the outcome,
it's an amazing experience and what I do know is I'm going to do my best in
whatever way I can to help a fairer and more equal society emerge. I know I'm
not alone in wanting that. If I can inspire others to do what they can too, I
will be delighted.
"Never
doubt that a small group of thoughtful, committed citizens can change the
world; indeed, it's the only thing that ever has."
Margaret
Mead
Friday, 2 January 2015
Look out 2015, my sleeves are rolled up!
It
started with a pledge to write a book about my experiences and life and how
they have shaped me. Not on January 1st but after my annual visit to Windsor
for the leadership dialogue, at the end of January. So I got down to it, found
I loved committing those words to the page ..... it became a therapeutic
process. Acknowledging the grieving I had done but also the joy I have
experienced and what I have learned; I recommend it, I really do. Recently I
joined a creative writing group and that too has enriched my life hopefully in
time my writing too. So all good....until I tried to write the last chapter.
Perhaps it's that phrase itself that makes it hard: the last chapter. Part of
me realised then that maybe I was almost accepting that this would be MY last chapter.
That second cancer diagnosis (however early and not life threatening at this
point) had crept into my future and was threatening to steal it...but really
only in my own head.
I'm so
glad I realised it then as something powerful shifted for me. A burden
lightened and my sleeves got rolled up. I have loved 2014 since then. My work
is not only interesting, immensely satisfying, it's also inspiring and
motivating. The Health and Social Care Academy is beginning to impact on
transforming health and care, my work with the WEL is life changing, developing
the coaches for person centred care too is a personal highlight. Im also
looking forward to launching the findings of the Workplace of Tomorrow forOasis School of Human Relations soon, ensuring 2015 has an exciting start.I'm
honoured too, to be able to work with the other organisations, supporting in
their own transformation. This is such a great chapter in my life when I'm able
to bring so much of my learning and experience to enable others.
But as the cartoon drawing above, which I got as a gift
when I stood down as chair from the Health and Social Care Alliance (the
charity I set up with others several years ago) suggests, I have been involved
in other things too. The YES badge speaks volumes.
2014 was
the year I found my inner politician! I have campaigned in both Westminster and
Holyrood for many years,it's a crucial part of a role of leader in the third
sector. And this year I used that experience to support the YES campaign.
And
whilst I absolutely accept the answer at the referendum. What I also know is
the very conditions that created the momentum for change have not gone. The
fact that Westminster no longer works for so many remains true. A year that saw
inequalities grow, heard doctors and teachers tell the tales of the impact of
hunger on those they serve, of the establishment supporting its own at the
expense of so many others, of trident weapons prioritised over people being
having a home or enough food to eat has left me determined to whatever I can to
change this.
So I have
decided to stand for selection as an MP in Edinburgh for the SNP, in North and
Leith and East Edinburgh. Reflecting the fabulous social and political
engagement that has been a result of the referendum, many others are standing
for selection too. So this may be the shortest political career on record! But
after much deliberation, an occasional "am I good enough" doubt (in
spite of many telling me how great I would be) what finally decided me was
knowing that I could make a real difference if I was fortunate to get selected
and then elected. My whole career has been about enabling others to have a
voice, to be heard and I can do that in parliament, ensuring that those calls
for change are acted on not just for the people of Scotland but all those
across the UK who want change towards a fairer, more just and equal
society. The sleeves are rolled up, the
next chapter however it unfolds, is going to be good!
A good
new year to you all. If you want to learn more about my campaign please follow and like my
Facebook page Audrey Birt SNP.
Subscribe to:
Posts (Atom)
Rollercoasters and life with cancer
What goes up must come down. I remember the chant from our favourite Disney ride in Florida. It’s beyond corny with chipmunk voices and pu...
-
What goes up must come down. I remember the chant from our favourite Disney ride in Florida. It’s beyond corny with chipmunk voices and pu...
-
It’s like that day before you go n holiday-wondering if you can get it all done but without the good bit to look forward to! At some point o...
-
Apologies to the Bard on this his birthday, but I wrote this a few years ago after my second diagnosis of breast cancer. I must admit when I...