Sending thanks for all the kindness, cheers 🥂

 

The experience of kindness 

It’s the time of year when amongst the stress of shopping and planning and paying for Christmas, there are the lights, the music and the kindness that make midwinter exceptional. My ability to enjoy this time is dependent on my ability to balance these polarities. I started to speak about my Mum recently who died five years ago and suddenly the seal on my emotions burst and the tears came. They were tears of loss which were unsurprising but beneath that was so much more. And generally it’s packed away at the back ot the wardrobe, never to be examined. Well at least not with an audience. I’m a proponent of the talking cures but maybe a wee bit guilty of not always engaging with it myself. 

As regular readers know it’s been a hard year. Two lots of surgery and a course of chemotherapy. And it’s the year my cancer moved from curable to hopefully manageable. A gentle way to say it’s stage four as the cancer has spread from my breast to my liver. It’s not large and is not giving me symptoms but I’m in the world of crucial scans and breath held as you wait for results. Early January is the next big one and I’m a bit scared. There I’ve said it. But I’m not going to focus on it over the festive season. Christmas is busy, fun and poignant too. Our Ukrainian friends have become part of the family, as this time has confirmed. They enrich our lives but we are very aware of the challenges that are back home and the mixture of feelings that accompany sharing in the happiness of our Christmas. 

The world feels such a difficult place this year in particular with Russia’s attack on Ukraine, the poverty worsened by global effects as well as political decisions closer to home and the evident suffering across the UK. But it’s been important to celebrate all we have and all we are with the people we love. And in the midst of the despair for some there is kindness that makes every day better. 

I’m reminded of the carers who help me on weekday mornings. Not only have they shown me care and kindness, they’ve become dear friends too. And the special family who help us in the house garden and even the animals are a precious part of our lives who brighten the day and week. 

We’re so grateful to all of you who have helped us this year, especially our family, friends old and new and all the health and social care services that I /we engage with now. In an NHS and social care system that is under enormous pressure we have met skill, compassion and a timely service when needed. Maybe I’m just lucky ( :0) or maybe many services are often much better than headlines would have us believe. Don’t get me wrong we definitely need more investment in health care and social care, including paying them better. But it’s important too to recognise and give thanks to where it works well. 

So I want to end this blog as 2022 closes too, saying thank you to everyone who has touched our lives this year. You’ve made it special and helped us be able to look forward with some hope into 2023.

Wishing you all a very happy festive season and may 2023 bring you all kindness in its many forms💕. 

Breast cancer is a thief…

 

The view from the cancer assessment unit above, the bonus of a trip to the oncology centre in Edinburgh! 

I wrote the poem below in October which as anyone affected by breast cancer knows it the breast cancer awareness month. I tried to avoid the cliche of posting this then. As breast cancer doesn’t go away come November. It’s there all the time, even when treatment is over. Of course as time passes it fades from the forefront of your thoughts and becomes a background hum you can’t quite switch off. And the hum gets louder as new scans come around or unexpected triggers hit you in the solar plexus. Andrew once said after an appointment which although reassuring was stressful, he reflected “it never goes away”. It’s the fear that is so easily triggered especially if the cancer advances to secondary breast cancer. I’m regularly at the oncology department now and most times there is something that worries me. My most recent is anaemia after starting the new drug. 

I’m a sleepysaurus and indulging in audio books and Netflix. Any recommendations are welcome, by the way! But Christmas is coming and I’ve been doing my best to plan ahead. I know it will be fun and I’m determined not to get stressed! But it's hard to think of the many people who approach the holiday worrying about money, missing relatives from their homelands or trying not to think that these special times are now numbered. I’m trying to do my best to help in whatever way we can. But it’s the connection I value at these times, not gifts or groaning tables of food uneaten. It’s important to remember that when I fret about gifts or when I feel tempted to over order food! 

This year when we’ve seen such a fractured world and deepening poverty and for me personally i’ve had to face  the spread of my cancer, time with those I love is the most precious gift of all. 

So here’s  my poem straight from the fears and the love at the start of advent.

Breast cancer is a thief

Stealing health

Stealing peace of mind

Stealing future dreams

Breast cancer changes your body

Changes your hopes

Changes your friendships

Changes your energy

Breast cancer makes you grieve 

for so many things

But - cancer showed me I’m loved

and I’m so grateful for that

At the end -and the beginning and all way through 

it’s really only love that matters.